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“President Reagan launched a national campaign against Alzheimer's disease 25 years ago when he proclaimed November as National Alzheimer's Disease Month in 1983.” I found this quote on the website for the Alzheimer’s Association. In the spirit of support, I am doing at least two postings about this disease. Today’s is a list of different sites that may interest those who are dealing with this or know someone who is. Later I will be doing a book review on Caring for a Loved One with Alzheimer’s Disease by Ron Kauffman.
Alzheimer’s Association - They have message boards, a senior housing finder, an online calendar to help coordinate helpers (I suspect that might be useful to many caregivers, even those who aren’t dealing with Alzheimer’s), carefinder assistance, what looks to be an excellent library service that works in conjunction with your local library, interesting articles and much more. They are currently asking people to come to their site to sign a proclamation to President-Elect Obama asking him to take the lead in making Alzheimer’s Disease a thing of the past. Doing this will also sign you up for regular updates from them. If you would rather not receive updates, just send an email requesting your name be removed from the Alzheimer Advocate Network to firstname.lastname@example.org or call (202) 393-7737.
National Institute on Aging – This site defines Alzheimer’s Disease, discusses symptoms, treatments, and frequently asked questions.
Mayo Clinic - world renowned for their medical research, they have a site that also offers general information on this subject.
About.com always has excellent information on topics. One of their highlighted topics caught my eye - “Is It Really Alzheimer’s? As Mr. Kauffman writes in his book, there are other diseases that can be similar to Alzheimer’s. It can be quite confusing and it is vital to stay on top of the diagnosis process with your doctor to get the best possible diagnosis.
Along those same lines, I discovered Helene Moore’s website a couple of weeks ago and wanted to share it with you as well. Her husband was mis-diagnosed as having Alzheimer’s Disease in 1993. Seven years later they corrected the diagnosis when they discovered that he does NOT have Alzheimer’s. She wrote a book, Behind the Mask, to relate their story. She also used her experience in dealing with caring for him over those years to spearhead her “Adopt a Caregiver” program.
One more personal blog I found of interest is written by Dr. Thomas, a physician and psychiatrist with Lewy Body Dementia and Alzheimer’s Disease, who writes about how he deals with it, as well as providing excellent resource information on the subject.
For several years, I have subscribed to “Alzheimer’s Daily News." This is an excellent email, which constantly keeps me updated on the subject of Alzheimer’s Disease, from Ageless Design. They also have an Alzheimer’s store.
Have you found any interesting blogs that would be useful for us? Please let us know in the comments below. Thank you.
Another wonderful website is
Love and kisses Helene
Dementia is a disease that knows no boundaries. It is blind to the categories in which we usually place our fellow human beings. It can occur at the age of 55 or 85. It can happen to Blacks, Whites, Hispanics, Asians, Jews, Christians, Muslims, males and females, rich and poor. It will not spare ex-presidents or ex-prime ministers. It did not spare my mother. Tears are shed by husbands and wives, sons and daughters, brothers and sisters—in fact anyone responsible for the care of a loved one with dementia.
Bob Tell, Author